Céline Dion’s sister shares another painful update in singer’s health battle

rewrite this content and keep HTML tags Céline Dion‘s sister has shared a heartbreaking update about the singer’s illness, saying the legendary chanteuse “doesn’t have control over her muscles” due to symptoms of stiff person syndrome (SPS). In a French-language interview, Claudette Dion told 7 Jours that her sister can no longer control certain body movements, but that the ultimate goal is “to return to the stage.”“In what capacity? I don’t know,” she added. FILE – Singer Céline Dion performs at the Vidéotron Centre in Quebec City on Wednesday, Sept. 18, 2019. Jacques Boissinot/The Canadian Press It’s been a year since the pop superstar announced her diagnosis with the rare autoimmune disorder of the nervous system. Story continues below advertisement Her world tour was supposed to take the 55-year-old to Europe and the U.K. this fall and next spring, but she announced in May that she would cancel the tour.“I’m so sorry to disappoint all of you once again,” she said in a May 26 statement. “I’m working really hard to build back my strength, but touring can be very difficult even when you’re 100 per cent.I’m so sorry to disappoint all of you once again… and even though it breaks my heart, it’s best that we cancel everything until I’m really ready to be back on stage… I’m not giving up… and I can’t wait to see you again!” – Celine xx…More info👉https://t.co/DHUch7W7OF pic.twitter.com/bgszxVd1za— Celine Dion (@celinedion) May 26, 2023“There are some who have lost hope because it is a disease that is not (very well) known,” Claudette told 7 Jours. Get the latest National news. Sent to your email, every day. “What pains me is that she has always been disciplined. She’s always worked hard. Our mother always told her, ‘You’re going to do it well, you’re going to do it properly.’” Story continues below advertisement In August, Claudette said that another of their sisters, Linda, had moved in with Dion to help with her care.“When I call her and she’s busy, I speak to my sister Linda who lives with her and tells me that she’s working hard. She’s listening to the top researchers in the field of this rare disease as much as possible,” Claudette told Le Journal at the time. 0:30 Celine Dion struggling to find medications for health battle, sister shares “I honestly think that she mostly needs to rest. She always goes above and beyond, she always tries to be the best and top of her game. At one point, your heart and your body are trying to tell you something. It’s important to listen to it.”The cause of SPS, an extremely rare disease, is still unknown, according to Yale Medicine, “but researchers suspect that it may be the result of an autoimmune reaction where the body attacks nerve cells in the central nervous system that control muscle movement.” Story continues below advertisement The name doesn’t do justice to the pain and life-changing symptoms the syndrome causes, Tara Zier, founder of the Stiff Person Syndrome Research Foundation, told The Canadian Press earlier this year.“A lot of people have challenges with mobility. Many have assisted devices for mobility, walkers, wheelchairs. Some people are bedridden,” she said.The Stiff Person Syndrome Research Foundation says “the most common symptoms of SPS are muscle rigidity, stiffness and spasms in the muscles of the trunk including the back and limbs.” 3:51 What is ‘Stiff-Person Syndrome’? Trending Now Jeffrey Epstein list: More than 170 people may be named in the new year Alec Baldwin led away by cops after heated face-off at pro-Palestinian rally: video These can be triggered by environmental stimuli, like loud noises or emotional stress.“The muscle spasms can be so severe they cause the person to fall down. The muscles gradually relax after the stimulus is gone,” the Yale Medicine website states. Story continues below advertisement While there is no cure for SPS, when doctors treat patients with this condition, Yale Medicine says they focus on managing the symptoms with medications “such as sedatives, muscle relaxants, and steroids.” FILE – Celine Dion performs in concert at the Bell Centre in Montreal, Sunday, July 31, 2016. Graham Hughes / The Canadian Press In early November, Dion made a surprise appearance with her sons when the Montreal Canadiens took on the Golden Knights in Las Vegas. 0:50 Céline Dion visits the Montreal Canadiens in Las Vegas The icon shared a few photos online, marking her first public outing since her diagnosis. Story continues below advertisement My boys & I had such a fun time visiting with the @CanadiensMTL after their hockey game with @GoldenKnights in Vegas Monday night.They played so well, what a game!!Thank you for meeting us after the game, guys!That was memorable for all of us.Have a great season! – Celine xx… pic.twitter.com/dUqvWTxUO2— Celine Dion (@celinedion) November 2, 2023In the snaps, Dion posed her children — René-Charles and twins Nelson and Eddy — in the locker room with Habs players and coach Martin St. Louis. The legendary singer and her boys had “such a fun time” visiting the team.— With files from Global News’ Kalina Laframboise and Sarah Do Couto &copy 2023 Global News, a division of Corus Entertainment Inc.

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