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cystic fibrosis

CF sufferers facing heavy financial, mental and physical burdens | UK | News

by Shawn Butlere
CF sufferers facing heavy financial, mental and physical burdens | UK | News

CF Trust members and the Daily Express at Downing Street (Image: handout) An alarming 43 per cent the UK’s cystic fibrosis sufferers worry about their future every day – as …

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Man to cycle 530 kilometres to save cystic fibrosis sufferers | UK | News

by Shawn Butlere
Man to cycle 530 kilometres to save cystic fibrosis sufferers | UK | News

Devoted dad Bob Clarke is cycling 530 kilometres from Vietnam’s Ho Chi Minh To Angkor Wat in Cambodia … to save cystic fibrosis patients like his treasured daughter.  And CF-sufferer …

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Categories Health

Jesse Browne’s dramatic health U-turn … all thanks to wonder drug | UK | News

by Shawn Butlere
Jesse Browne’s dramatic health U-turn … all thanks to wonder drug | UK | News

A five year-old with cystic fibrosis is finally “living his childhood” as his health soars … thanks to a wonder drug the Daily Express helped fight for. Last year anxious …

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Categories Health

Free Prescriptions Spring Budget Plea | UK | News

by Shawn Butlere
Free Prescriptions Spring Budget Plea | UK | News

Chancellor Jeremy Hunt has been urged to give a compassionate Spring Budget – by finally granting free prescriptions to sufferers with rare genetic diseases like cystic fibrosis. A year ago …

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Call the Midwife’s Jenny Agutter rails against CF drug ban

by Shawn Butlere
Call the Midwife’s Jenny Agutter rails against CF drug ban

The Call The Midwife star has the gene that causes the lung condition and has a niece and great nephew with CF. Kaftrio has been called a near-cure for many …

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AI app could ‘revolutionise’ the lives of people with chronic lung conditions

by Shawn Butlere
AI app could ‘revolutionise’ the lives of people with chronic lung conditions

An app using artificial intelligence could be “revolutionary” for patients with chronic lung conditions such as cystic fibrosis. Experts claim the technology is able to predict when a patient will …

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Family beg health chiefs ‘save our baby’ as they claim medicine is expensive

by Shawn Butlere
Family beg health chiefs ‘save our baby’ as they claim medicine is expensive

The seven-month-old baby’s family are pleading for health chiefs to reverse draft guidance that said the wonder drugs are too costly for new and future patients. His father Dan said: …

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Categories Health

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